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Where should I go for further treatment after diagnosis of HOCM?

Hypertrophic Cardiomyopathy (HCM) | Last Active: Nov 28, 2017 | Replies (7)
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@choochoo

I'm glad that somone has HOCM. Most have been just HCM. Not that I'm glad but wanted to know if they told u, u might have sudden death with HOCM. My hubby had 2 48 hr monitors. He's OK but please check. They also told us it was very highly lnherited. I live in KY and we go to a Dr. Girly. He's very good. He has his controlled with a Bata Blocker for the time being. Probably will have the alcohol abration.

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Replies to "I'm glad that somone has HOCM. Most have been just HCM. Not that I'm glad but..."
Cynaburst, Alumna Mentor | @cynaburst | Nov 28, 2017

@choochoo - Before your husband chooses to have an alcohol ablation, you should be sure that he is evaluated at a place that has a team which can also perform myectomy, if that is indicated. Alcohol ablation is a procedure that is not appropriate for everyone, and in fact, may actually increase the risk of needing a pacemaker or ICD or suffering a SCA. Additionally, the individual's anatomy may not lend itself to alcohol ablation. If possible, it is always best to seek out an opinion at a place like Mayo which does both and has a multi-disciplinary team to evaluate each person.

Also, you should know that the current thinking is that most with HCM are obstructed. 70% of HCM patients have either resting obstruction or latent obstruction during exercise.

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