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Pulmonary contusion and ARDS from trauma in teenager. Recovery ??Lung Health | Last Active: Dec 23, 2017 | Replies (17)
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Replies to "Hi Sheri @bassman, I was thinking about you and your daughter today. How is she doing?"
We have had two trips to Bostons Childrens Hospital. We were there yesterday. We had a CT Scan done and two test to check her heart for pulmonary hypertension and blood work and lung function testing. Her heart is great and no issues. She is starting to show some improvement in her lung function testing but her FVC is 58% (improved from 40%) FEV1 is 37% (improved from 29%) and FEV1/FVC is 68%. This are improvements from 7 months ago. This is with no treament except a low dose steroid inhaler one in the morning that we started about 2 months ago. Her CT Scan show severe inflammation of the small airways but no scarring. Pretty much all encompassing in both lungs. They and the pulmonologist from Albany have never ever seen this develop or happen from trauma. They are perplexed by her case. They have put her on a stronger inhaler Flovent 110 HFA two puff morning and two puffs at night. Then the first week in January they are going to have her be in the hospital for 3 days and have a high dose of steroid intravenously. They want to monitor for those 3 days to make sure she isn’t having any major issues and then we wait a month and come back for another round of lung testing and see if we have improvements. They feel 7 months for the amount of trauma she went thru that it is still early in the healing process. However, once again they have never seen this happen in a trauma case and arent sure why it has happened. I was having Madison do Frequency Micro-current therapy (FMS) non needle acupuncture therapy. Dr in Boston said stop. I also was going to look into the Wei Institute. Do you have any information or background on any of these therapies. Drs seem very anti holistic and I heard the Mayo clinic embraces both. I just ordered a natural supplement for internal anti inflammation called CUR-Q10® ULTRA Curcumin CoQ10 . Any experience with this product. She went to her varsity basketball practice tonight and actually was able to participate full court. They coach text me and said she couldn’t believe she did the whole practice. Madison said she had to stop once and I am sure she wasn’t going full speed like she use to. She still gets breathless pretty easy but she is an athlete. Her oxygen levels are good. They did a sleep test and she maintains her oxygen in the mid to high 90s while she sleeps. Any suggestions or feedback? It us just interesting that the # 3 pediatric pulmonology hospital in the country has never experienced this scenario before. The doctor called me three times today. They are really rallying around her and trying to come up with the best plan. I just would think some Doctor out there has had to see this before. They are also going to put her on an antibiotic that has anti inflammatory side effect, Azithromycin 3X per week to see if that makes a difference. Interesting note. She had a headache and I gave her two Motrin on the way to practice. Then I read that Mortin can have anti inflammatory features. Maybe that is why she felt like she could do more at practice????