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@bassman

Thank you. My name is Shari. They keep telling me exercise is good. We have completely backed off anything that is conditioning or makes her oxygen level go below 90%. Now she just strictly PT which is lifting weights and stretching. She lost 20% of her weight and has muscle atrophy so we work w a nutritionist and almost have all her weight back on and her strength and muscles are coming back as well.

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Replies to "Thank you. My name is Shari. They keep telling me exercise is good. We have completely..."

@bassman, Shari, you have one amazing daughter! Look at how far she has come in six months. Sounds like she is getting great care as well. I am sure you will see improvement week by week!