I have had Errosive Lichen Planus for about 35 years. I have it vaginally, and orally for 35 years. I have from time to time had very painful lesions. I have been tracked by oral Specialists with steroids and autoimmune drugs. I have been pain free for a couple of years and resist any oral steroids like Prenison because it makes me sick internally.

I one was prescribed medicine used to suppress the immune systems of organ transplant patients. I had a very severe reaction and had to take the aid car to the ER.

I am currently having very painful lesions. And cannot find any physician who knows how to treat my symptoms.

Tried to make a Mayo Clinic appointment but no one there was interested in talking to me. Others I have seen in AZ do not have knowledge about my disease including the dentist.

Any advice! Thanks Mary