← Return to Have nonepileptic seizures/psychogenic nonepileptic seizures (PNES)?

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Profile picture for hosey70 @hosey70

i make sure he isnt gonna hit anything or fall then i talk to him his neurologist gave me diazepam to give him to help stop them. but he holds his breath looks like he is being zapped his legs and arm arm stretched out fist are tight and he holds his breath. they look so painful sometimes i can get him to swallow pill between them. his last for 30 to an hour sometimes he has one comes out of it goes right back over and over. i dont want to not get him to er and something more happens

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@hosey70 sounds like Cluster Seizures. My son has had them for years diagnosed at age 2 with epilepsy, Lennox-Gastaut Syndrome. Which has a distinct effect on EEG. Started with Multiple myoclonic jerks at an early age. He would have up to a hundred at a time, like rapid fire. Now that he is older, 37 he has similar episodes to what you described your husband having. Our son is mostly non-verbal so hard to know what he feels like. In the last 6 months he’s had 2 episodes of cluster seizures that have persisted for 6-8hrs. Both times related to UTI. The difference in our son’s case is each seizure usually lasts less than 60 seconds but repeats every 1-2 minutes. And again he has a distinct abnormal EEG with slow spike waves. A little over 2 years ago our youngest daughter was diagnosed with epilepsy after 3 episodes of “passing out” with short lose of consciousness, yet normal EEG. What prompted the diagnosis was when her husband FaceTimed me while she was seizing (generalized tonic type) that lasted at least 2-3 minutes followed by stupor/confusion. She slept on and off most of that day. She’s had one episode that I know of since diagnosis and being placed on anti seizure meds. Have you video taped any of these episodes? Might be helpful to show doctors.
Hoping you can get some answers soon.