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My son was just diagnosed with primary generalized epilepsy
Epilepsy & Seizures | Last Active: Feb 27, 2020 | Replies (4)Comment receiving replies
Hi @cummings I'm so glad you found Connect. How concerning this must be for you and to not know if your son's diagnosis is the right one.
I’d like to introduce you to other parents who have children living with seizures. Please meet @clairesmom, @mmas, @ketomom, @hermsenk, @inkdfrog, @patrassi, @ndapanda @krd94 and @blath2000. You may also be interested in reading more about them in these discussions in the Epilepsy group.
– #AsktheMayoMom about Pediatric Epilepsy http://mayocl.in/2mzpuVY
– Ketogenic diet for children http://mayocl.in/2j4h7zQ
Cummings, You mention that he is still having the episodes at school. Does your son have a follow-up with the neurologist?
Replies to "Hi @cummings I'm so glad you found Connect. How concerning this must be for you and..."
Oh, Jan 16 must seem like light years away. Do you have any strategies to help you until you get to see the neurologist?
@patrassi do you have any ideas?
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Yes, he has an appointment with the neurologist on January 16th. They put him on topamax and he is up 100mgs a day. I got a call from the school today and they told me he had one episode, but the nurse had a difficult time waking him. She had to do a sternum rub a couple of times and he finally came out of it.