Radiation therapy for vulvar cancer

He finally made it safely! Reports that heating issue is fixed. But we're still getting a spare part, just in case. Took him a while but he finally got me calmed back down. Thank you for the encouraging words!
Vicky

Hi Vicky, @vsinn2000

How are you feeling these days? Thinking about you and wishing you well.

When is your next treatment?

Teresa

Hey lady! I feel incredibly bad for being out of contact for so long. I'm home and desperately trying to recovery from chemo and radiation. The level of fatigue is astounding and has had me pretty much just plain down and out. I go back in mid April for an evaluation and a decision on a surgical fix or more treatments to shrink things. So I'm in a recovery and hold pattern right now. I will stay in more frequent contact since I can now stay awake for more than a couple hours at a time. Miss you all,
Vicky

@vsinn2000
Hi Vicky:

So good to hear from you! I am glad that you are in the recovery process right now. I'm sure that you must be extremely tired from all of your treatments. Keep resting and keep taking good care of yourself!

Teresa

I lost the thread and finally found it again. I've been reading the replies from "talking frankly" and doing a whole lot of thinking. My birthday was a couple weeks ago and during one of those sleepless nights it hit me. Hard. How many more birthdays do I get? Wow. I went from there. It was hard to shake the train of thought but it still is a question we all think about. I guess I was blocking myself from going there. Not a very good thought to have but I need to be responsible about things and make sure my husband knows what needs to be taken care as far as running the house and where papers are, etc. Since I handle all of that. Time to put on the big girl britches!

Happy belated birthday, Vicky. You are smart to think ahead and plan, especially for your husband. But I can see where the thoughts about "how many more?" can lead to a downward spiral. Just a gentle reminder to think of the teachings of mindfulness and living in the moment. Each day is a blessing. Enjoy the hear and now. While these are tired clichés, they ring true. Don't they?

@vsinn2000 Hello Vicky,

You have been on my mind. How are you doing these days?

I would love to hear from you when you have an opportunity to drop a post my way.

Teresa

Teresa,
I've been laying low, just trying to regain my strength and get ready for the next round of diagnostic tests that happen on May 1st. It's a full day of PET/CT, labs, radiology apointment and oncology apointment. I'm not looking forward to it at all and thank goodness my team is awesome enough that they've scheduled it to be done under sedation. I had no clue that recovering from chemo and radiation would be so much work. My rock is still standing tall and doing an amazing job, while having his own issues. He had cataract surgery yesterday. All went well and it kind of forces him to slow down for a few days, which I consider an added bonus as he does too much as far as I'm concerned. It's great to hear from you and I hope you are doing well. I know I've slacked off on reading and responding, mainly because I'm just plain tired all the time. I will try and make time to get back here more often when I'm actually awake and functional.
Vicky

@vsinn2000 Vicky:

It is so good to hear from you! Laying low is very appropriate given the chemo and radiation treatments. I am glad that you are taking good care of yourself. When you begin to get your strength back you can rejoin us.

I'm glad to hear that your husband's cataract surgery went well and he is taking it easy. It sounds like you are giving him some good recovery advice!

Take care of yourselves and post when you feel stronger. I'll be praying for your May 1 diagnostic tests.

Teresa

Late or not, a reply is always welcome. Here this one is, months later. Lol. But it's ok. I go for awhile in between posts, longer than I should but I don't have a lot of good days. Maybe after the re-testing and whatever comes after that. It's thought consuming and terrifying right now and will get worse as it gets closer. I'm extremely fortune to have an absolute rock for a husband, as most who read my posts know. He does not hesitate to step in when I'm overwhelmed and outside my comfort zone to the point I'm ready to flip out. My care team during radiation and procedures were fantastic and I learned to trust them enough to tell them when it was enough. And they were very good at learning ahead of time and during treatment what my limits were. Hopefully your stay in hospital went well. Take care,
Vicky