Hi @ronaf
You may wish to review these discussions thread as well
- Question regarding lung surgery https://connect.mayoclinic.org/discussion/question-regarding-lung-surgery-240dd3/
- MAC and NTMs with Cavities https://connect.mayoclinic.org/discussion/mac-and-ntms-with-cavities/

@dmarks, thank you for jumping in with an answer and sharing your experience. We can all benefit from hearing this. I was wondering if you had taken any steps to prevent re-exposure to getting it again? i.e. raising the water temp in your hot water tank etc? I know that sometimes it doesn't matter what you do, you can catch it again by simply breathing! Was just wondering.

@rona, No, you are using this post correctly. I think there is not that many people on here at the moment that has had that surgery. You may want to look at the NJH website, they tend to favor doing that type of surgery there. I know that they do post testimonials from patients and also have a video library about this sort of procedure. Check out the ones Colleen just posted as well. I tell you, the learning about this disease never ends...! https://connect.mayoclinic.org/discussion/question-regarding-lung-surgery-240dd3/ and https://connect.mayoclinic.org/discussion/mac-and-ntms-with-cavities/

@dmarks I took Clofazamine for about a year and the only side effects I noticed was that I had a nice tan (not the horrid purple skin you read about when you Google side effects) and also dry skin and dry eyes. I have been off MAC drugs since April 2017 with no residual side effects. I am one with cavitary lesions who decided against the surgery. I am well now and can always revisit it later if necessary.