Connect
← Return to Any Adhesive Arachnoiditis members here?
Discussion
Any Adhesive Arachnoiditis members here?
Spine Health | Last Active: Dec 4 6:51pm | Replies (117)Comment receiving replies
MY AA IS PROGRESSING ALSO. I HAVE ALSO BEEN IN TOUCH WITH DR. TENNANT. I ASKED HIM ABOUT REMOVING THE SCAR TISSUE THAT IS STUCK TO THE NERVES. HE EXPLAINED AND SAID NO! WELL I WAS AT A POINT WHERE I FELT SO DESPERATE, DEEP DOWN I KNEW NO MORE SURGERIES, NO MORE PROCEDURES. TIRED OF MY NERVES JUMPING, SPILLING THINGS NO CONTROL OF THOSE NERVES. I WENT AHEAD ANYWAY. 2 HR. TRIP TO THE HOSPITAL. IN THE CAR I WAS SO NERVOUS SAYING TO MY HUSBAND I HAVE A BAD FEELING. I WAS COXED BY OTHERS BUT IT WAS MY DECISION. THE 1ST PROCEDURE IT KINDA WORKED NERVES SEEM TO STOP. 2ND PROCEDURE HE DID MORE. OF COURSE IT WAS WORSE! COMMON SENSE I TOTALLY IGNORED. I NEVER TOLD DR. TENNANT TOO EMBARRASSED. NERVE PAIN WORSE. TOES, NEUROPATHY. I HOPE I HELPED A LITTLE BIT? KEEP THE PAIN AND EMOTIONS AWAY WHEN MAKING DECISIONS. WHEN YOU ALREADY KNOW THE CONSEQUENCES .
Replies to "MY AA IS PROGRESSING ALSO. I HAVE ALSO BEEN IN TOUCH WITH DR. TENNANT. I ASKED..."
Connect
Hi There, I am so sorry to hear of your desperate attempt to improve the nerve scarring. Believe me, most of us know what you mean. There are times I´ve screamed, "cut my legs off, cut them off!" And this when my pain protocol is taking a break and nothing works. But truly, attempting more surgeries is the worst thing one can do. When pain started really bad and I saw a kindly older physician, he grabbed me by the hand and said, "young lady (HA! I was 70 Plus), PROMISE ME, you will not let anyone touch your spine: you will wind up in a wheelchair." And he did it with such force and earnestness that it stayed. Plus Dr. Aldrete´s five-hour consult with me back in 2012 generated a 15 page report saying exactly the same thing: do not let them operate ever again. So we all have to learn that awful lesson, just don´t beat yourself up. And if these words here can help anyone else, we will have done our job. Too often it is next to impossible to find anyone with whom one can TALK! This is truly the beauty of Mayo Connect. A way to help each other out. I have not tried to make an appointment with Mayo about AA, so not sure what their experiences are, but will probably need a consult soon. Don´t be too embarrassed to confess to Dr. Tennant. He is the kindest and most knowledgeable professional in AA, and he´s seen it all. Take care, Joan