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Any Adhesive Arachnoiditis members here?
Spine Health | Last Active: Dec 4 6:51pm | Replies (117)Comment receiving replies
Hi, @caklady - thanks for sharing your experience with seeing improvements in your adhesive arachnoiditis through visiting a rheumatologist and addressing your inflammation.
I'd like to bring into this conversation others who may be interested in reading about and discussing your experience, like @mdmo @ursweetpam @rachelarachgirl @gerisues @rpennino @peggyella @christinasuit.
@caklady - wondering if the steroids and getting your numbers down have reduced any symptoms you were experiencing before?
Replies to "Hi, @caklady - thanks for sharing your experience with seeing improvements in your adhesive arachnoiditis through..."
I too am interested in the inflammation aspect. I also have scoliosis, so a lot going on.
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I don't know where to start. It has done many things for me. I got diagnosed with AA in 2010. I was given Opiods and over time I started having other problems. I couldn't even take a shower without sitting down. My heart would race and my hair fell out and came back looking like lupus hair. Test for Lupus and RA were negative. I didn't have any eye lashes. I was put on Thyroid medication. My inflammation markers were very high and kept climbing. Then overtime I was diagnosed with leaky gut, anemia and Raynards syndrome. When I got diagnosed with low thyroid my iron was fine. These things happen over time.
The treatment from the Rheumatologist has stopped the progression of the autoimmune symptoms. It had attacked my facets in my lower back and I couldn't even go to the grocery store. The pressure going down my lower back was unbearable. I can just say that I wished I would have went to the Rheumatologist along time ago. I have so many broken blood vessels on my legs and purple toes. I am posting this because I hope that someone can learn from my experience and go get help for their inflammation. I no longer take the strong pain medication. I told my neurologist...don't need to take them anymore!
My Erythrocyte Sedimentation Rate was 56 mm/hr and my he-CPR was a 36.0 mg/L. The last he-CPR test I had was 8.0mg/L. It hadn't been below a 22.0 mg/L in 6 years. I hope this will help someone else not wait so long to get help.