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Any Adhesive Arachnoiditis members here?

Spine Health | Last Active: Dec 4 6:51pm | Replies (117)
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@galady

Crazy name, huh? Pain is nothing to laugh at. Where nerves cluster and causes pain that will make me crazy. No cure, just control pain. No doctors specialize, it is relatively rare. Caused by multiple surgeries, multiple injections, which ìve had every one. I'm hardly able to walk, the pain is so great. I'm housebound in a recliner. Have to have help with everything. Wheelchair if I have to leave my chair. Anybody else have this ?

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Replies to "Crazy name, huh? Pain is nothing to laugh at. Where nerves cluster and causes pain that..."
Justin McClanahan, Moderator | @JustinMcClanahan | Mar 8, 2018

Hello @galady,

I moved your discussion and combined it with an existing discussion about adhesive arachnoiditis. I did this so you could meet the members who are already talking ab out this rare condition. I suggest clicking on VIEW & REPLY so that you can see the whole discussion and can read other members' posts. You may also want to check out the following discussion as well, https://connect.mayoclinic.org/discussion/i-am-desperate-to-find-a-dr-who-treats-arachnoiditis-i-live/.

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jelizabeth | @jelizabeth | Mar 26, 2019

I don't understand why more research isn't being done for this terrible disease.

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