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Any Adhesive Arachnoiditis members here?

Spine Health | Last Active: Jan 18 12:45pm | Replies (114)
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@annmaria

Hi. I. Am. Suffering. With. Excruciating pain in my back going down my legs every day of my life I have adhesive arachnoiditis..My payment without it is not treating my pain well enough I’ve been on the same pain medicine for 20 years I know I need an upgrade it needs to have something to help me I’m not even living I’m only existing I have no life at all I can’t cook I can clean I can’t do anything I can’t go out with my daughter and grandkids I can barely walk I need someone that specializes in this and is not afraid to give out pain medicine but god sake’s there are so many people in this country that are some suffering from severe chronic Express Jennings hey why do we have to be punished because of the junkies under streets this is so unfair it is wrong in every sense of the word I need help I need this pain to stop or at least control much better is there anyone out there that knows where I can get help in the South Jersey area such as Blackwood swell or Williamstown New Jersey .. so please write back to me I need to get relief ASAP I have a spinal cord surgery November 2016 and his left me with this dreadful disease please help my pain thank you and God bless you AnnMaria

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Replies to "Hi. I. Am. Suffering. With. Excruciating pain in my back going down my legs every day..."
John, Volunteer Mentor | @johnbishop | Jan 21, 2018

Hello AnnMaria (@annamaria), I would like to add my welcome to Connect along with @lisalucier and other members. I am sorry you are in such pain. I know that it can seem unbearable at times. There is another discussion you might want to read through to see if you find any help:

A discussion listed in Colleen's (@colleenyoung) post earlier in this discussion -- "I am desperate to find a dr who treats arachnoiditis":
-- https://connect.mayoclinic.org/discussion/i-am-desperate-to-find-a-dr-who-treats-arachnoiditis-i-live/

I did a search and found the following article that mentions Dr. Forrest Tennant who talks about a new treatment for arachnoiditis:
New Treatment Gives Hope to Arachnoiditis Patients:
-- https://www.painnewsnetwork.org/stories/2016/7/9/new-treatment-gives-hope-to-arachnoiditis-patients

Then I did a further search on Google Scholar (https://scholar.google.com/) using "Dr. Forest Tennant arachnoiditis treatment" and came up with more articles. Here is the link for the search results:
-- https://scholar.google.com/scholar?hl=en&as_sdt=0,24&q=Dr.+Forest+Tennant+arachnoiditis+treatment

Please keep asking questions and advocating for yourself. You are not alone.

Hoping you get some relief for your pain soon.

John

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