Dear @plshelpmyfatigue. I am also so very sorry to see what you are going through. Continuing your investigation with the Rheum and sleep study is a great idea. I hope they have answers and solutions. If they are perplexed, you might consider being evaluated at a treatment center with a comprehensive team of specialists who can work together to make a diagnosis and treatment plan. My mom suffered from disabling Fibromyalgia for many years, undiagnosed, because the disease was not yet recognized/known by her physicians in Florida. My Dad flew her to Mayo clinic in Rochester in the 1970's where she was diagnosed with Fibromyalgia. They provided education, diagnosis info, and a treatment plan and shared it also with her local internist and rheumatologist for follow-up. Her quality of life improved dramatically; now is she 86, with no fibro symptoms, amazingly. 🙂

I hope you will be so fortunate to be healthy again, and feeling great!

About profound fatigue and sleepiness, have your tests included screening for West Nile Virus, Epstein Bar Virus (related to Chronic Fatigue), and Vitamin D deficiency? I have friends with each of those conditions, and none were diagnosed quickly. If you are sleeping a lot and not getting enough sunlight, you may not getting enough natural vitamin D. Also I hope your thyroid tests were comprehensive (not JUST a screen for TSH), as you might have high autoimmune antibodies though the TSH screening can show normal levels.

Maybe the sleep clinic will have ideas on how to alter your sleep patterns with Blue Light or other alternatives. It not be the best option at present, but when you are feeling better, there are some excellent DVDs (short and long) of Qi Gong healing gentle exercises, which include very low impact breathing/movement to improve energy, fatigue, and to heal the body. Many are free on youtube. Let me know if you want me to send you links to specific videos. I hope you will feel better soon, and that if per chance your condition is chronic that it is highly treatable and allows you to function fully.