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Constant Fatigue, 20 year old female
Autoimmune Diseases | Last Active: Apr 14, 2023 | Replies (29)Comment receiving replies
Hello @plshelpmyfatigue,
Welcome to Connect. I'm hoping you can meet other Connect members who have similar health concerns and learn what they are doing for treatments.
Since you mentioned having a positive ANA, I’d like to start by introducing you to a few members with very similar conditions. Please meet @cmtg, @pinkmk, @aman_23_23, @mommaj, @tljam, @whitechinacat, @palscoreen, @terryblink, @pinkstar, @rebo, @v1crew, @jewel8888, @tbeckys, @WendyAnne, @559purplepatty, @atorset, @beff2468, @taterjoy, @kanaazpereira, @lisabeans, @wottone, who I'm hoping can offer some information that may help.
You may also want to take a look at the following discussions:
– Undiagnosed auto immune disease: https://connect.mayoclinic.org/discussion/undiagnosed-auto-immune-disease/
– Autoimmune Diseases and Fatigue: https://connect.mayoclinic.org/discussion/autoimmune-diseases-and-fatigue/
– What happens when you have a disease doctors can't diagnose TED talk by TED Fellow Jennifer Brea who became progressively ill with
myalgic encephalomyelitis, commonly known as chronic fatigue syndrome:
https://www.ted.com/talks/jen_brea_what_happens_when_you_have_a_disease_doctors_can_t_diagnose?utm_source=tedcomshare&utm_medium=email&utm_campaign=tedspread
@plshelpmyfatigue have you received any diagnosis from your doctor?
John
Replies to "Hello @plshelpmyfatigue, Welcome to Connect. I'm hoping you can meet other Connect members who have similar..."
Hi @johnbishop , thank you so much for these resources! no diagnosis yet. Meeting with a rheumatologist soon, so hopefully that'll show some answers. Thank you!!
Thanks @plshelpmyfatigue, can you update us after your appointment to let us know if you find out anything? Thank you for sharing...
John
One of the required symptoms of the neuroimmune disease Myalgic Encephalomyelitis ("Chronic Fatigue Syndrome") is "post-exertional malaise". That is, a worsening of disease symptoms (often delayed 12-48 hours) following physical or mental exertion. Other similar disabling illnesses do not have post-exertional malaise, and so this symptom is often used to distinguish ME.
For those with ME, trying to exercise beyond available energy can worsen symptoms dramatically for hours or days (causing a "crash" or "relapse"). That is, trying to exercise too much makes ME worse.
For severe ME patients (who are generally bedridden), even "mundane" tasks such as taking a shower or preparing a simple meal can trigger a crash. For mild ME patients, some light exercise and stretching every day can be beneficial. But part of the management of ME is knowing your energy limit, and consistently keeping exertion below the level where it triggers a crash.
Connect
what happens when the doctors cannot diagnose your health problem? YOU BECOME CONFUSED, IRRITATED, DEPRESSED, SAD AND ETC., ETC. YOU GIVE UP YOU STOP BELIEVING IN YOURSELF, AND FEEL AS THOUGH YOU ARE LOSING IT. YOU WONDER WHAT ELSE CAN BE WRONG WITH YOU THAT THE DOCTORS DO NOT BELIEVE YOU. AND THEN YOUR FAMILY AND FRIENDS DO NOT BELIEVE IN YOU. WOW! SOME PEOPLE BECOME SUICIDAL WITH THEIR PHYSICAL AND NOW MENTAL PAIN.
THEY GIVE UP.
SHOULD THE DOCTORS TAKE A NEW COURSE TO HELP THESE PATIENTS? SHOULD THIS ADDITIONAL COURSE BE ADDED TO THEIR CURRICULUM IN ORDER TO GRADUATE? OR,,,, DO THEY ALREADY HAVE THIS SPECIFIC PROBLEM ADDRESSED PROPERLY INTO THEIR CURRICULUM? OR......IF SO, IT SHOULD BE ENHANCED ENHANCED, ENHANCED.
for the most caring of doctors please forgive me.
OR, AS IN THE DIFFERENT CAREERS SUCH AS THE POLICE: THE UNACCEPTABLE CANDIDATES ARE WEEDED OUT AND NOT ALLOWED TO CONTINUE ON WITH THE COURSE.
SHOULD THIS ALSO BE WITH THE DOCTORS?
this suggestion is meant only to help.