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Treatment for amyloidosis and multiple myeloma

Blood Cancers & Disorders | Last Active: Feb 8, 2018 | Replies (21)
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@beckyoutlaw1115

I was diagnosed 3 years ago, was in remission for 7 months, then back to where I am now which I'm not happy about but I realize it could be a lot worse. My symptoms started with fluid buildup in my feet and ankles, then later in my lungs. That's when I went to Mayo!

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oldkarl | @oldkarl | Oct 30, 2017

@beckyoutlaw1115 Just thought I would mention that in my search for a real dX since 1975, I have asked 60-70 M.D.s, 300-400 PAs, nurses and nurse practitioners, med techs, etc. I have got the first solid answers from a newspaper reporter and an Internet doctor. Now, almost two years later, all my medical team agrees with the first stage of the diagnosis. Multiple mutations of Light Chain Amy, including hATTRwt, Cystatin, primary, systemic, perhaps others. Of course, if some medico refuses to recognize that dX, they are soon not part of my team.

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