Looking into switching to an insulin Pump

Posted by karenps @karenps, 3 days ago

I am currently using Novolog Flexpen for my fast acting insulin and it only allows me to inject full units rather than half units or less. I've recently been diagnosed with Type 1 Diabetes caused by immunotherapy. I had a very rare , aggressive and fast growing breast cancer which neccessited an agressive chemo/immunotherapy treatment. The great news is that I am now cancer free! The unfortunate news is that my pancreas makes absolutely no insulin. No beta cells. I am learning that this is a very rare Type 1 in that it literally happens over night so my body had no time to adjust to my changing metabolism/glucose regulation. It creates an extremely volatile situation in that daily, I hit highs near 300 and lows below 70. It's frustrating and exhausting and I am definitely in need of a pump to regulate the nuances my body is experiencing. I was on steroids for over 7 months, had colitis for over 2 months and was hospitalized for 3 weeks. I am thankfully off the steroids as of 7 weeks ago as my colitis has healed. I finished 15 rounds of radiation a month ago. My body can't regulate all of this and my endochronologist and dietician are steering me toward pumps. I'm choosing between the Omni and the Tandem Moby. The first doesn't use tubes.
I'll love to get feedback and pros and cons and favorite pumps
Thank you

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I haven’t used those you mention. There are good options now. Read all you can before deciding. I think you’ll be surprised how much work they can do for you in blood sugar management. I really struggled before getting a pump.

I use Medtronic 780 with Instinct sensors. Also, if you use insulin with pump, it and all your supplies can be covered with Medicare and Supplement plan under DME and covered 100% with no out of pocket costs after deductible. (Make sure you have satisfied Medicare requirement of blood test for C-Peptide confirming Type 1.) Your endo should be familiar with this. The pump company should also be familiar with tests Medicare requires.

You can also look at reviews on you tube to see how others feel about various pump systems.

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I use syringes and 10ml vials of multiple types of insulin. My A1C is below 6. There are many types of insulin that allow me to take shots in the AM. allows me great control. I don't need to take a pen shot before every meal. Most Drs prescribe Log type insulin pens which I find less than ideal.

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I, too, developed T1D from immunotherapy I really like my Omnipod. I understand the extreme highs and lows. Unfortunately, that never ends with T1D. I agree that it is a daily struggle and exhausting. Check with your insurance and see what they will cover

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We definitely have that rare type of diabetes type one. Immunotherapy is great and eradicated my cancer totally. But the diabetes is so out of control. I'm gonna make a decision this week about the pumps. Any reasons in particular you pick that and it works for you?

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I use syringes and 10ml vials of multiple types of insulin. My A1C is below 6. There are many types of insulin that allow me to take shots in the AM. allows me great control. I don't need to take a pen shot before every meal. Most Drs prescribe Log type insulin pens which I find less than ideal.

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@venture my diabetes has been really hard to get under control, but I think this week I will be choosing my insulin pump and moving ahead from there. My providers feel like it will help with my situation.

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