Ok thanks that would be great!

@becky53, Hi Becky. I apologize for the delay in getting back to you. As I said before, I did look up 'obliteraive bronchitis'. How much do you already know about this disease? Do you know what your current lung function level is? Are your doctors suggesting a lung transplant soon?

Hi, no need to apologize, I'm excited to hear back from you.the last time I had my function test it was 43% and the bad air was 26% I am on 6 liters of oxygen when up doing things and 3 or 4 at rest.I hope I have spelled my disease correctly.it's called Obliterative Bronchiolitis.this effects my broncular tube.causes inflammation

@becky53, Hi Becky. Have you already taken the pre-qualifying tests for a lung transplant? If so, are you listed already? Or are they waiting for your lung function to drop further before doing so? When I looked up oblitirative bronchiolitis, there was mention of very infected air sacs. Is that what you understand it to be also?

@becky53, Becky, thank you for sharing your numbers for your oxygen use and lung function level. That has to be hard for you. Not just physically, but mentally too. It is hard to accept that we cannot do the things the used to do; and other people our age are still doing. I met with another member on this forum in person several weeks ago. She is on 9 liters of oxygen 24/7 and her lung function is between 17-20%. She was going through the pre-qualifying tests for a lung transplant at the Mayo. I could not believe her champion attitude and wonderful spirit. We walked together and that girl could go! I asked her how she does it. She said the only option she has is to keep on going. She said she somewhat ignores her condition and just keeps going forward with her life. She was a real inspiration to me. I know it isn't that easy for many who struggle to breathe.

My was denied transplant once before because my chest wall was to thick even with my BMI being 31 she went ahead.I go the 29th of this month to get a new CT scan to see if it has went down.this has what has brought me to learn about Mayo Clinic because my Dr told me I would have to be sent to a high risk hospital and also just the very short time I have been on here it's been a blessing to me.I want to give everyone a big Thank you and God bless!

@becky53, Dear Becky, which Mayo Clinic are you going to? If you get an opportunity, try to attend a lung transplant support group there at the Mayo. I go every chance I get. It is reassuring to meet others who have already gone through a lung transplant and see how well they are doing in year 10 and upward. Hugs, -Terri

@becky53 these “connect” groups at mayo really are phenomenal. Mayo was not my transplant center, and I cannot say enough good about how mine (MGH in Boston) was but the support on connect is unique I think.
Are you considered high risk because of BMI? When I got listed my BMI was above 30 but I don’t believe I was considered high risk. Maybe BMI criteria is different for lung vs liver. I was transplanted about 14 months ago. By the time of my transplant my BMI was down to around 28 or 29. It’s lower now.
The last 14 months rate up there as the best of my life, so grateful to be alive and healthy.
JK