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DiscussionAre there BMI restrictions at Mayo Clinic for a Lung Transplant?
Transplants | Last Active: Nov 6, 2017 | Replies (26)Comment receiving replies
Replies to "Good morning @becky53 and @rosemarya, At Mayo Clinic, we would like patient's BMI to be below..."
Hello, sorry I haven't been back in touch.i started back my rehab this pass week this will be the third time I have been in rehab.okay I want to share with the group a little of my journey with this disease. About 3 years ago I gotten pneumonia after that I countiued getting pneumonia 3 more times. The doctors found a mess on my lower left lung I had it removed it was sent to Pathology and was finally diagnose with. Obliterative Bronchitis under the umbrella of IPF . this has progressed. I'm on oxygen 24-7. My doctor said I would be a good candidate for a transplant.Also this lung disease is caused from the environment is what I was told.If y'all could give me any insight on this disease I would greatly appreciate it.Thank you
Thank you so very much
@becky53, Welcome back, It is good to hear from you. There is no need to be sorry, ever, for an absence. We understand that our medical treatments need to come first. I hope that your rehab is producing some positive benefits for you.
I would like to bring one of our mentors, Terri @windwalker, into this conversation. I think she will be better able to give you some information or resources.
Rosemary
@becky53, Hello Becky. I am curious, what kind of environmental exposure are they saying that could have caused your IPF? I don't know a whole lot about IPF, but I am willing to learn more about it in order to be of better support to you. I have met several people who had lung transplants because of IPF. (they are doing quite well by the way) They got their IPF disease either from genetics or workplace exposures.
@keggebraaten this is interesting to me. When I was on the list waiting for transplant (liver) and considering dual listing I read that some transplant centers require a BMI under 30, which my transplant center (MGH) did not but "just in case" I went worked hard at losing weight to get it below that. At this point it is just above 25, I would love to get it under that mark.
On my vacation in the last couple of weeks I didn't really exercise at all and I ate more than usual but somehow I low three pounds! I can't figure that out at all.
JK