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Inflammatory bowel disease (IBD) support group: Let’s connect

Posted by Lisa Lucier, Moderator @lisalucier, Aug 27, 2025

Welcome to the IBD support group on Mayo Clinic Connect.

Do you or a family member, friend or loved one have an inflammatory bowel disease, such as ulcerative colitis, Crohn’s disease, microscopic colitis, lymphocytic colitis or collagenous colitis? Or have you or they experienced a complication of IBD, such as pouchitis, bowel obstruction, fistula, anal fissure or an abscess? If so, this is a great place to talk to others with similar experiences. It’s a welcoming space to learn from each other and share challenges, coping strategies, setbacks and what helps. This is also a place to get support and input from other patients as you go through the diagnostic process for these conditions.

Please take these steps to participate in the group:

- Follow the group.
- Browse the topics.
- Use the group search to find answers to your questions.
- Introduce yourself.

Let's chat. Please start by introducing yourself. What is your experience, or your loved one’s, living with inflammatory bowel disease or possible IBD symptoms? You might share things such as: What type of disease do you have? How long has it been since diagnosis? What symptoms have you experienced? How is the disease managed?

Do you have a question, tip or story to share?

Interested in more discussions like this? Go to the Inflammatory Bowel Disease (IBD) Support Group.

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kewimu | @kewimu | 3 hours ago
In reply to @1000riverrat "I have been battling IBD since I turned 50, and I will be 53 this December...." + (show)
Profile picture for 1000riverrat @1000riverrat

I have been battling IBD since I turned 50, and I will be 53 this December. I was hospitalized for Colotis in June 2024 after having severe bowel issues (blood and undigested food in my stool). Initially diagnosed with neuroendocrine cancer through a DAT scan, but later the inflammation was diagnosed as Crohn’s disease. Budesonide helped me function until I was put on Humira and then a bio similar, which put me into remission until I built antibodies to it. I went 5 months on Imuran which didn’t work (but had to be used to comply with insurance) until I was eventually prescribed Yesintek. My last colonoscopy (this week) indicated that I have inactive Ulcerative Colitis and I am now in remission! Now I’m at a point where I can prove my worth to my employer (they have been patient and somewhat understanding) and hopefully live a normal life until I am able to retire in 5 years! I’m enjoying that I’m in REMISSION!

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@1000riverrat that's great so happy for you! That's the dream we all have you know? I just turned 53 and was diagnosed with crohn's 6 years ago.. I've been through everything you can imagine endless hospitals while you all know the drills.. the nightmarish life that you have to live with this disease.. how it destroys every single thing that you were ever doing in your life. Currently I'm on rinvoq after entyvio and remicade at both failed and still end up in the hospital every 2 to 3 months.. literally a lot of the staff recognize me and I'm do my best to be as appreciative and cooperative with them. I always try to talk to all my nurses and doctors and be positive. When I'm not on the toilet or puking or screaming and pain lol. I'm hoping my treatment is going to work successfully for me so I can also go back to work.. currently unemployed though

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