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Newly diagnosed obstructive HCM: seeking advice and reassurance
Hypertrophic Cardiomyopathy (HCM) | Last Active: 1 day ago | Replies (60)Comment receiving replies
A common thread in most of these posts is that the patients were originally diagnosed with a heart murmur. Perhaps doctors should be required to give echocardiograms when hearing a murmur. That may help patients sooner.
Replies to "A common thread in most of these posts is that the patients were originally diagnosed with..."
@soozyq je suis totalement d’accord avec vous 🙏🏻
@soozyq Debra has welcomed you to Connect and I welcome you, too. Heart murmur - when my family doctor (PCP is the term used today), heard one, we noted and watched it. The next time I saw him it was still there - and I was sent to cardiologists for "tests." Diagnosed with HCM, doctor I was assigned to had good training at a place that is now a COE (Center of Excellence).
YES! I agree with your statement "Perhaps doctors should be required to give echocardiograms when hearing a murmur. That may help patients sooner." The Hypertrophic Cardiomyopathy Association 4hcm.org has put screening on their priority list to lobby legislators. Young athletes need to be screened, murmurs or no murmurs.
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Hi @soozyq, and welcome to Mayo Clinic Connect.
You posted in the Hypertrophic Cardiomyopathy group, do you have this condition?
You're right about many of the HCM folks here having murmurs.
An echo is done for murmurs too, so that is something already being looked at.
The trouble is making sure the tech doing the echo is proficient, the doctor reading the echo is looking for the obstruction and all the measurements done like the LVOT pressures.
HCM is a wily critter. You can have good days and be fine, and have terrible days and be afraid you are having a heart attack.
I had a murmur for 40 years. It was fine. Until it wasn't and that's when everything changed. Didn't happen overnight, but rapidly progressed.
So, do you also have a murmur and known HCM?