1 yr anniversary since RARP today - still cancer free!!

Posted by shayes914 @shayes914, 6 days ago

I’m told the chance of recurrence drops a little with every undetectable PSA test for the first 2 years then drops a lot thereafter. While it will never be zero, I am grateful for today :).

FYI: Final pathology on the prostate was Gleason Score 9 (4+5) and it had made it to the surface of the capsule. No evidence of spread at time of removal.

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

Congratulations! My situation is similar to your and I just completed my third year of undetectable results. Hoping and praying for more of the same in the future; for you as well.🙏🤞

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Good new, hope you stay cancer free for life😃

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I also hate to rain on your parade. 'Cancer-Free' is not something one can assume. A medically correct wording is 'No Evidence of Disease'.
I do hope this will be true for many years to come.

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Congratulations!!😊👍🏾. Keep living a clean and balanced life and stay positive.

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Super news - celebrate, enjoy! Congrats on catching it before it spread, very glad for you.

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Congratulations. I had a similar outcome. My surgery was in January 2025. My PSA has remained undetectable. My only issue is that my Keagle exercises and pelvic floortherapy have failed and I’m now faced with the tough decision of having surgery for the ongoing urinary incontinence or living with having to use a pad and/or depends on a daily basis. I’m hesitant to have further surgery but approaching the two-year timeframe and I am told that I will not recover any further without some intervention. I am 71 and will be 72 in April.

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Profile picture for hmish @hmishkind

Congratulations. I had a similar outcome. My surgery was in January 2025. My PSA has remained undetectable. My only issue is that my Keagle exercises and pelvic floortherapy have failed and I’m now faced with the tough decision of having surgery for the ongoing urinary incontinence or living with having to use a pad and/or depends on a daily basis. I’m hesitant to have further surgery but approaching the two-year timeframe and I am told that I will not recover any further without some intervention. I am 71 and will be 72 in April.

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@hmishkind Totally not fun! But aside from the actual surgery - which is a few hours - what do you have to lose?
You may gain an entire lifetime pad free and be able to function normally. Just my two cents…
Phil

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Profile picture for heavyphil @heavyphil

@hmishkind Totally not fun! But aside from the actual surgery - which is a few hours - what do you have to lose?
You may gain an entire lifetime pad free and be able to function normally. Just my two cents…
Phil

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@heavyphil I appreciate your thoughts. I treat at Mayo Clinic in Phoenix and am reconsidering living my life the way it is now which I agree with you is no fun. I would love to know from others that have failed with pelvic floor therapy and have had the same surgery that is recommended for someone like me that continues to have urinary incontinence. I guess I’ve just been stuck with the fear of it failing.

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Profile picture for hmish @hmishkind

@heavyphil I appreciate your thoughts. I treat at Mayo Clinic in Phoenix and am reconsidering living my life the way it is now which I agree with you is no fun. I would love to know from others that have failed with pelvic floor therapy and have had the same surgery that is recommended for someone like me that continues to have urinary incontinence. I guess I’ve just been stuck with the fear of it failing.

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@hmishkind Totally understandable because if it fails…then what? The WHAT is pads for the rest of your life, just like it is now so what do you lose? Hope in a procedure you’ll never do?
It’s like saving that really great shirt you bought for that special occasion…which never comes and the shirt gets old and goes out of style; but you STILL cling to the hope that you will wear it someday…
You really should speak with @jeffmarc - he just had an AUS inserted. He knows all there is to know and you can be sure he researched it thoroughly.
He may even be able to recommend surgeons in your area or not too far from you. Best,
Phil

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Profile picture for hmish @hmishkind

Congratulations. I had a similar outcome. My surgery was in January 2025. My PSA has remained undetectable. My only issue is that my Keagle exercises and pelvic floortherapy have failed and I’m now faced with the tough decision of having surgery for the ongoing urinary incontinence or living with having to use a pad and/or depends on a daily basis. I’m hesitant to have further surgery but approaching the two-year timeframe and I am told that I will not recover any further without some intervention. I am 71 and will be 72 in April.

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@hmishkind
I had an AUS installed in June and activated in July. I showed up for surgery at 9 o’clock. They started at 10 and by 12:30. I was being driven away after recovering from sedation.

The biggest problem is that there are stitches in the perineum and it is painful to sit down.

I just rolled up a thick towel, shaped it into an U and sat down with the open part in front, and I had no problem.

It works great. I no longer have to wear a pad. I no longer have to wear black pants everywhere. I don’t worry when I’m going somewhere that I’m gonna have leak problems.

Some people have said they leak a little bit and need a thin pad.

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