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Profile picture for djlom15 @djlom15

I am a very active 80 year old female former personal trainer who was diagnosed with ET JAK2 about one year ago. I have been on 500 HU, aspirin and have had 3 blood dumps. My platelets were 640 and now in high 400 range. I have never had any symptoms but my diagnosis was found through a CBC draw. Looking back through my blood tests over the years I’m sure I had this blood disorder at least for the last 10 years. My only current symptoms of this blood disorder are dry skin, thinning and more briddle hair strands and I do get tired in the late afternoon. I usually take a 45 minute nap around 4 in the afternoon which seems helpful. I get at least 45 minutes of cardio 5 days a week and 3 days of strength training. This helps so much with my upbeat mood. It’s so important to keep moving. The patients with this disorder should be so thankful that our diagnosis can be managed by this chemo pill. I’ll take thinning hair and general skin dryness anyday when I continually hear about these other individuals going through much worse cancers.

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Replies to "I am a very active 80 year old female former personal trainer who was diagnosed with..."

@djlom15
Thanks for sharing. I am impressed with your exercise routine, you, go girl!!
Touche' if you have to get cancer........ My numbers are up and down in the 500s, I was told when I get over 600 is when they will give me HU, why the blood dumps?