@przybillan

Each of us experiences ET differently. BRAVA to you for seeking a second opinion, and learning as much as you can about ET.

Your oncologist -- not the internet or me! -- is your best guide for the treatment decisions that will work best for you.

As you probably know, hydroxyurea (HU) has been in wide use for ET and other MPNs, as well as sickle cell anemia, for decades.

My oncologist recommended HU upon my ET diagnosis at age 69, three years ago. My weekly dose is now 15 500mg capsules. The only problems I've had with HU are dry skin and occasional constipation. Since it's greatly relieved the horrible headaches and exhaustion of ET, for me HU has been a life saver.

I'm so glad you've found this forum, Nancy! Here you'll meet ETrs from all over the world. We know what you're going through, and will try our best to help.