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Does anyone else get night sweats, extreme cold or heat on TYMLOS?

Posted by alidamc @alidamc, Sep 26 12:40pm

I have cold intolerance. Probably from past years of smoking cigarettes.
Lately after taking TYMLOS, after or for about an hour I start perspiring and get very hot. Then I get cold. Sometimes I wake up soaked in perspiration.
I’m 75, so it’s not menopause-related.
I am scheduled for a thyroid ultrasound, but it’s unrelated.
Thyroid cancer and thyroid benign nodules run in my family.
My hair is still falling out in scary amounts.
I may have to do a GofundMe for a wig. (That’s a joke.)

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alidamc | @alidamc | Oct 25 12:35pm
In reply to @summera1 "Yes, I have been experiencing that as well, but I am also hyperthyroid. I asked PC..." + (show)
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Yes, I have been experiencing that as well, but I am also hyperthyroid. I asked PC doctor to have me start HRT. Not sure if he changes his mind, as he ran blood work. I also might need thyroid meds adjust. I have been having hot flashes for twenty years, as soon as I had an ovary removed. Not sure if Tylmos is the cause. But, Tymlos is causing leg and belly swelling.

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@summera1 if it were me, I would contact a Clinical Educator at TYMLOS plus the FDA drug reactions and report the belly and leg swelling. That should not be happening to you. My hair continues to fall out.
Sometimes I think I need another drug.

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