@techi, I am sorry to learn of your complicated, and confusing medical history. I have a liver/kidney transplant, and some of the items that you have mentioned sound familiar to me-but that is all. Like you, I am a patient. I applaud you for learning about your situation and advocating for yourself.

I can understand your fear and genuine concern about all of this. I think that it is not too unusual for some doctors not to communicate. I am glad that you were able to be seen at Mayo Clinic. I get the impression that you are a distance from Mayo, am I right? If so, Are your current doctors going to accept the findings from Mayo? What steps are being taken to decide if the procedure needs to be repeated?
Rosemary