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Ostomy: Adapting to life after colostomy, ileostomy or urostomy

Ostomy | Last Active: Mar 24 1:09pm | Replies (419)

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@colleenyoung

Welcome @idino and @msgtrebholtz.

@idino, I am unfamiliar with Ogilvie Syndrome. It sounds like diagnosis to ileostomy to herniated stoma moved really fast for you. What has been done about the parastomal hernia? Have you had to have surgery and move the stoma?

Jason, your attitude is commendable and that you've adjusted to "life with a bag" reasonably easily will be a great support to others here. How has the ileostomy given you a new lease on life? What are you able to do now that you couldn't before?

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Replies to "Welcome @idino and @msgtrebholtz. @idino, I am unfamiliar with Ogilvie Syndrome. It sounds like diagnosis to..."

I appreciate your kind words Colleen.

As a kid, and when I was in the military I always loved to run. For about 8 years that was nearly impossible. Unfortunately I never figured out how to carry a port-a-potty on my back so I was stuck inside. Treadmills are great if it is raining or snowing, but nothing beats being out on the road.

When I was in the hospital in the summer of 2017 I told myself that as soon as I was able I was going to start running again. It was a slow go at the beginning. Lots of setbacks with trying to figure out a good bag set up, then figuring out a good way to secure the bag and make sure I didn't pull the bag off or end up with a hernia.

I set my sights on 5k's to start, and in 2018-19 I ran about 20 of them. I am running 8-10k on a pretty consistent basis now and am running in several virtual events while everything is shut down.

My goal is the Earth Day 1/2 marathon next spring in St Cloud, MN. I would also love to go down to Jacksonville, Florida for the river run 15K one of these years. When I was stationed there in the 90's I ran it twice and it would be a great way to feel like I have come full circle.

There are so many other things. I love to hike and go on long walks with my dog. We Went to the black hills in 2018 for a week and hiked over a 100 miles. It was great! Just think about the new found time that used to be spent in the bathroom! The last few weeks before my surgery I was going over 30 times a day!! Im free!

If anyone has questions, or needs help with anything please ask. I have gotten myself through a lot of situations by trial and error and if you can learn from my mistakes and the goofy MacGyver tricks I have figured out, then that is one less painful day you have.

Thanks again for allowing me to hang out with the group. I look forward to helping and learning for all.