Ostomy: Adapting to life after colostomy, ileostomy or urostomy
It takes time to become comfortable with an ostomy — a surgically created opening in your abdomen that allows waste or urine to leave your body.
Many questions may run through your mind as you practice good ostomy care and live your life. It can help to talk to others who have been there. Perhaps you'd like to ask others questions like: What can I eat? What about leaks? Can I go back to work after colostomy? Can I ride a bike with an ileostomy? Will everyone figure out I've had urostomy surgery just by looking at me? What about intimacy?
Welcome ostomates. Let's talk frankly about living with an ostomy. Why not start by introducing yourself? What type of ostomy do you have? How's it going?
Interested in more discussions like this? Go to the Ostomy Support Group.
@hanseron Manny thanks for such good ideas. My order to Hollister is my next action.
In Hawaii we say Mahalo for those that help us.
@mimcg...Thanks very. helpfull. Maybe my expectations for more days is unrealistic. I’ll try yor suggestions.
hi --- press on. you'll be ok.
I have 2ostomies. Food is a cautious area for me. I eat brown rice, appropriate fruit,peanut butter and Jif marshmallo. All in small amount. Wheaties for breakfast, dinner my husband is creative within guidelines. On my last visit to Dr. Connor Loftus (GI) at Mayo he came up immediately with 2 possibilities; microscopic colitits and small bowelovergrowth. His diagnosis was cleared by an immediate colonoscopy with 8 biopsies of colon tissue ( that was negative) . So, he started me on doxycycline for small bowel overgrowth. The diarrhea cleared up in 12 hours. I continued the med for 10 days. Note: while waiting for my annual appt. at Mayo I went to local doctors and not one mentioned either of Dr. Onnors’s diagnosis. He is sooo talented.
The MD who is so sweet and talented at Mayo GI is Dr. Connor—-spelled his name wrong. When I saw him in August I had had diarrhea for 3 months. Sorry for above errors and exclusions.
I have a fistual (canal) between the colon and bladder and doctors want to remove both parts of the colon and the bladder and give me two bags. anyone have any experience dealing with a fistual. I have had it 3 years now with periodic bladder and kidney infection being the issue.
I have had 2 ostomies and Hartman pouch for4 years. Previous to that I had lived with a ureterosigmoidostomy resulting from birth defect of bladder extrophy. The ureterosigmoidostomy was an internal ostomy: ureters to sigmoid colon. As young woman was very engaged in horseback riding & other sports. Difficulties were nightly incontinence and screwy electrolytes. Married x2, widowed first time during graduate school. GraduTed with MSN from University of Alabama with specialty in Adult Mental Health and evolved into specialty working with self harm clients.Second marriage 43yrs so far, we had to practice Birth control because I would not be able to carry baby. Everything OK with annual follow-up at Mayo. At 69 had severe diverticulosis and one perforated and I ended up septic x2. Dr. Frank, my Urologist told me time for serious surgery. Mayo had a nurse call me every week the whole summer for prep and support. Met with whole operating team in conference with Dr. Frank and Dr, Heidi Nelson. Surgery resulted in colostomy and uro-conduit and hartman’s pouch. Biggest issue for me post -op was looking at the bags alll over my belly. One thing none of us thought about was that I had never had normal bowel movements or really “understood” the GI system ( normal). It has taken 3-4 yrs to get my life totally reorganized and have a defined purpose for my life. Ostomies truly change your life, how you decide to accept or not accept does make a huge difference. Still a learning process.
Ok- my dad just got a Urostomy- i have a question- ive tried to look up everywhere and cant find a name for it -since he had bladder cancer earlier this year they took his kidney and ureter out on one side he had chemo then he got pneumonia - so that postponed his surgery but he had it on the 19th this month- they removed his bladder and only used the ureter tube from one kidney left straight out- whats the type of surgery? Is it just called a urostomy since a ilea conduit was not used? I cant find anything on web on it so i was just wondering- also he had some blood come out of his previous to surgery normal urination place while having a bm is this normal? He would not call and ask anyone but i just wanted to know to offer him-peace of mind... thanks in advance for any info!
Hi @formydad,
The procedure might be known as Cutaneous Ureterostomy; I found this information about Urinary Diversion: https://www.niddk.nih.gov/health-information/urologic-diseases/urinary-diversion
I’m hoping @nickkarenl @jimmy2248 and @hodagwi can shed some more light on your dad’s surgery.
I haven't had any surgery yet so not able to add anything, sorry.