Pfft! My son had surgery last wk and has an ileostomy, and nurses came by once "in patient" for pt edu, and now that he's discharge there's no support or help. I was trying to be proactive in getting things lined up for my lil guy, and here we are: tomorrow is day 5, and it needs to be changed, and theres no support from the hospital that did the surgery (no doctor, no nurse prac, no nurse, no appt for pt edu). They did the surgery, I left my son out in the dark and cold!

@hanseron Okay, your comment here is not recent, but responding in case someone reading can help. We cannot find an ostomy nurse anywhere in the Chicago area that can help my mother-in-law. She is now 92, has managed her ileostomy bag and care independently for over 50 years. She is in good health physically, but is having memory issues and an ostomy nurse would be very helpful. We have not been able to find an ostomy nurse who works outside of a facility. She lives in a facility, but they do not have any staff that can help. Family is helping, but she is getting worse at handling changing the bag, and so the future is scary.