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DiscussionAnyone have chronic lymphocytic leukemia (CLL)?
Blood Cancers & Disorders | Last Active: 3 days ago | Replies (406)Comment receiving replies
Replies to "FYI, when my mother was diagnosed, it had metastasized to her liver; this was when her..."
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@shelli3300 I've done a ton of research and just completed a clinical trial at Mayo Rochester under the care of a CLL specialist who only treats this one disease. I'm also a CLL patient at the NIH and participate in a study there as well. I'm confident in my knowledge of the disease and its treatment options and have read countless research papers. Can you please provide supporting scientific evidence (a research paper perhaps) which supports your claim? CLL is highly heterogeneous. While your mother may be in the 30% indolent category the rest of us are not. Stating unscientific facts giving false hope to many patients offering treatment options unsupported by science, or the CLL community as a whole, is unhelpful. Again, seeking guidance by a true CLL specialist at Mayo is a smart move, jumping on unproven supplementation is not.
Perhaps this CLL Society link will help
https://cllsociety.org/2026/07/use-of-supplements-in-cll-sll/
Vitamin D is the only supplementation which has some scientific support.
Or this one more specific
https://onlinelibrary.wiley.com/doi/10.1155/2013/972913
"In many normal and malignant cells, increased GSH [glutathione] level is associated with a proliferative response and is essential for cell cycle progression"
Adding GSH may actually be doing harm.