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Has anyone had surgery for Apical Hypertrophic Cardiomyopathy
Hypertrophic Cardiomyopathy (HCM) | Last Active: 1 day ago | Replies (73)Comment receiving replies
@walkinggirl
Thank you.
I have felt so alone .
I have echo's MRIs . The works . ( Simple terms ) the ventricle thickening is now over 50% . I get pain if HR goes under 60 or over 100 .
Have seen a surgeon here . No one has done an AHCM operation in australia HCM is done . Hubby is cardiac anaesthetist. So I am fortunate with contacts .
Replies to "@walkinggirl Thank you. I have felt so alone . I have echo's MRIs . The works..."
@annieobee I have read about the possibility of injecting basically radio waves to shrink the electrical wall. mayo clinic uses it to treat liver cancer.
@annieobee sorry for that dicta typo, obviously, ventricle wall, not electric wall!
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@annieobee "I am fortunate with contacts" ((HUG)) I am very relieved that your hubby is in a supporting role, he is a professional in the heart field; that is to your huge advantage. Both you and your husband may know more about your medical situation because of your contacts. It would not surprise me if the medical people caring for you are consulting with colleagues, perhaps around the world, about your needs. You may choose to ask questions and become a participant in determining your own care. What kind of care are other patients with AHCM receiving? What is the next step in your care at this time? No, indeed, you are not alone!