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@mountainlover1 I swear this beast we live with travels around my body thinking it is a personal cafeteria line! Arthritis! Oh yeah! Knees or hands or feet?. Days or weeks? Tongue! No taste or selective wonky taste. Eyes?? If she wants to work that crossword puzzle—- then she will need to squint or zoom every word. That head! LC loves my head. Daily attacks that can last what seems like forever! And then if LC is on a mean streak— let s experiment with balance issues or brain fog. Some days I pray for death.
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@84forward
Agree 100% . It is exausting. I feel people do not believe me anymore. It is to much to explain in one word. Too much to digest for people who do not experience this madness.
@84forOH- and just start to feel a bit better and plan an outing or something fun-then see what happens-the worse !
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@84forward yes you are so right, Those who don't suffer don't understand not really. I think of all the people who have Chronic Fatigue and Fibromyalgia likely also caused by viruses and for decades people dismissed their complaints as "in their heads." Now there is a different name but that is what it was called in the 80's. With Long Covid You never EVER get total relief because if one area or symptom is better the other rears its ugly head. Sadly a certain administration stopped a lot of the necessary research to look for actual treatments that work. Perhaps for some individual symptoms they do but at this point I just live with it as best I can. Have no faith in the current federal government to spend money researching what affects millions of us in the country. Not fun but what choice do we have? I was part of a long covid group for a couple years starting in Summer 2021-- 3 mo after being diagnosed with it. And all this stuff is what so many of us experience. I know I could have it worse as so many infected in 2020 have it but it could also be better. Like all chronic crap that many of us deal with.