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First radiation oncology appointment today

Posted by jmgpdx68 @jmgpdx68, Sep 30 9:27am

Those who were helpful in this thread:
https://connect.mayoclinic.org/discussion/thoughts-on-treatment-options/
…may like to hear that I’ve got my first radiation oncology appointment today. The MD’s profile states that he offers IGRT/IMRT and SBRT.
A few folks on that thread mentioned SBRT so I’ll ask about that one.
He also offers 3D-CRT, but I haven’t heard much about that?

I’ll keep you posted!

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

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wheel1 | @wheel1 | Oct 3 11:00am
In reply to @oldgreenpaint "@jmgpdx68 I did active surveillance for 15 years after being diagnosed with 3+4. During those years,..." + (show)
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@jmgpdx68

I did active surveillance for 15 years after being diagnosed with 3+4. During those years, treatment methods became more accurate and more plentiful. If you have low quantity Gleason 4, like 10% or less active surveillance is a good option.

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@oldgreenpaint
That is a very good point. I was under active surveillance for non Hodgkin’s lymphoma 23 years ago, but they did not call it AS back then with that cancer, it was watch and wait, or watchful waiting. Just in a couple years new treatment’s, new immunotherapy drugs , radiation treatments and clinical trials were all coming out. I was able to mentally handle the cancer inside of me knowing of six month ct scans, blood work, but most importantly the likelihood of waiting ultimately was not going to impact my future treatment and results. I think you were definitely rewarded in the advancement of prostate cancer treatments by waiting. Who knows what could be here in two more years. However not everyone will want to for their personal decisions in wanting to go forward with AS and seek more immediate treatment. It is absolutely difficult knowing you have cancer inside of you, and today we all know many many cancers have a high fatality rate and we get scared, however there are cancers today that are treated as a chronic disease that will be with you for a long time. Prostate cancer is like that and my previous non Hodgkin’s lymphoma, life expectancy when i was diagnosed 7-11 years back then, today 20 years.

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charliebrowntri7 | @charliebrowntri7 | Oct 3 12:52pm
In reply to @jmgpdx68 "UPDATE: we’re moving forward with SBRT. Considering my low grade diagnosis (3+3=6 3+4=7 group 2 favorable..." + (show)
Profile picture for jmgpdx68 @jmgpdx68

UPDATE: we’re moving forward with SBRT. Considering my low grade diagnosis (3+3=6 3+4=7 group 2 favorable intermediate) I won’t do testosterone therapy or anything else other than the 5 treatments. He even said active surveillance was still an option, but I’d rather just get it done and done. He gave a 90% chance of cure, with the usual ED/incontinence chances later on.

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@jmgpdx68 exactly my story. Surgeon meeting on Thursday. PETscan on 24th.

Radiologist at MAYO Phoenix was excellent.
2 3+4. And 2 4+3(70%)
Prayers!

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ezupcic | @ezupcic | Oct 5 8:22am
In reply to @charliebrowntri7 "@jmgpdx68 exactly my story. Surgeon meeting on Thursday. PETscan on 24th. Radiologist at MAYO Phoenix was..." + (show)
Profile picture for charliebrowntri7 @charliebrowntri7

@jmgpdx68 exactly my story. Surgeon meeting on Thursday. PETscan on 24th.

Radiologist at MAYO Phoenix was excellent.
2 3+4. And 2 4+3(70%)
Prayers!

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@charliebrowntri7 are you leaning toward surgery? in your diagnosis was there any evidence of EPE?

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