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@cetzler
I didn’t start treatment until my spleen started aching due to the enlargement. My Mayo Clinic specialist put me on Ojjarra which has worked beautifully on my spleen and elevated platelets.
Best wishes on your journey.

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Replies to "@cetzler I didn’t start treatment until my spleen started aching due to the enlargement. My Mayo..."

@cindyem
Thanks.
We each have a similar problem coming from a different place.
Your spleen is producing too many platelets and for me it's a Mutation in my bone marrow.

@cindyem
What was your platelet count when it affected the spleen? My H/Onc doctor was concerned about the spleen enlargement in the beginning of my ET treatment. My platelets were about 770. I had ultrasound and my spleen was normal size.
Now my platelets have been around 510-520. I am taking HU.