Physical pain 4 months post Reclast looking for guidance

I got a reclast infusion and had severe hip pain for three days- 4 months later I woke up one morning unable to get out of bed - since diagnosed with PMR - polymyalgia rheumatica- now on 20 mg of prednisone for 2 months- I believe there is a connection but my dr disagrees. I found a case study in medical literature with a patient with a similar correlation. I filed an adverse event with FDA . Ask your dr to work you up for PMR - elevated ESR and C reactive protein- good luck

@ajcaspe
Thank you for your reply. Is the prednisone helping you? I will bring this information to my doctor next week. Much appreciated.

@kaarenc
Yes prednisone kicked in after3 weeks - starting at 20 mg - I’m now at 17 and starting to feel symptoms not everyday but enough to worry I need to go back to 18 mg - seeing dr today

@ajcaspe
I also had 2 Reclast injection.
The first injection I was sick for a year and I found out that my Vitamin D was severely low, my Calcium was low and my PTH was high. Always get your Vitamin D level checked before any osteoporosis injections. My Cardiologist just came back from a conference and she said osteoporosis patients should not get any osteoporosis injections if your Vitamin D is low. Your Vitamin D should be at least 60-80.
The second time I got the Reclast injection I was sick for 4 months and my Vitamin D level was 80 at that time. Then I shortly found out that I have Secondary Hyperparathyroidism and should not haven’t got the injection.
I will never take any type of osteoporosis medication again.
Please make sure your vitamin d is at least 60-80 before starting any medications or injections.
I would also get your Calcium Panel check to.

Chinese massage can be helpful . They use a holistic approach

I’m sorry to hear you are experiencing all this. I am, too, but hadn’t heard of anyone else with these issues lasting for months. My doctor told me everything should calm down and be OK, but it hasn’t so far. I’m sorry I agreed to receive Reclast. I will not get another infusion as it has so negatively affected my life. I hope someone can speak to how to overcome these problems. Best wishes to you for a resolution!

Hello, I had my first Reclast infusion this past May, after one year of monthly Evenity injections. A few days after the Reclast infusion, I had a variety of symptoms including several days of eye pain and then leg and acute foot pain which lasted a couple of weeks. I am an active 72 year old who walks daily and works out. I have found that I continue to have some all over bone or muscle pain that is manageable but a change in the way I felt prior to my infusion. Similar to what I imagine might be arthritic pain, despite the fact I have not been diagnosed with arthritis.
Last night, during sleep, a sharp pain in my upper left back woke me. It continues now as intermittent but consistent sharp pain. I did nothing unusual and it seems strange to have this sudden onset new pain. I can’t help but wonder that all these new and unfamiliar body pains are a result from the Reclast even several months later. Any feedback or advice appreciated. I Replied here as it seems several of you I’ve had some similar issues. It is quite discouraging, but I felt because of my worrisome bone density scan, I had no choice but to agree with treatment.

I had bone pain for roughly 8 months after my first Reclast infusion. Also had pain on Fosamax which was about 9 months before moving on to Reclast. Nothing debilitating; just sharp, shooting pain on occasion. On Fosamax doc said to take a couple week break; pain subsided. When I said I was having some pain after Reclast, he said it's not the reclast. Drug literature from the manufacturer says it can cause pain months after the infusion. Had second Reclast infusion a week and a half ago; so far so good.

I had been on Prolia for 10 yrs. Had a three month reaction on 21. There had been a re-call but they claimed my shot not involved in temp damage. Mine was given in FL in May. Then second shot for a year Jubbonti made me very ill and still in Oct Had 10 pain for 7 mos. 24 hrs. Stll have frozen ankles and red legs swollen feet. All followed 24 hrs after shot of not a generic but a bio similar using data from Prolia???!!!

@artistel81 I believe that they are, I experienced the same! 69 y old male with constant pain for the past 27 months from receiving that poison!