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Neuroendocrine tumor of the cranial nerve
My last PET scan results showed new metastases
The problem one is very rare in my cranial nerve
Looking for any information
Thank you
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@sophiarose Oh my! Sorry to hear that. I have not heard of a cranial nerve NET. In theory, I would think that your PRRT treatments might help. But theory and reality don't always agree. Did your doctor suggest any treatment alternatives?
The only thing he has me seeing a speech therapist
I have an appointment in December
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1 Reaction@sophiarose Why will you be seeing speach therapist?
They treat people who have issues with swallowing
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1 Reaction@sophiarose Do you have that issue now?
Strangely I thought I have a post nasal drip
Due to moving from NY to NC in January
I hope that is all it is
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