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Replies to "@melaneeb thank you for sharing your experience with this rare type of melanoma. I am sure..."
Eye Conditions | Last Active: Sep 30 8:53am | Replies (7)
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Replies to "@melaneeb thank you for sharing your experience with this rare type of melanoma. I am sure..."
@auntieoakley I see my eye doctor every 6 months for check up. I haven't seen the occular oncologist for 2 years because of distance .
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@auntieoakley It is a rare type of melanoma and I was diagnosed with ciliary body melanoma. After having my eye removed it was sent for a biopsy where they performed genetic testing to see if I had a genetic mutation in the BPA1 gene. They did find I do have a mutation in that gene which puts me at a higher risk of metastasis. If occular melanoma spreads it usually spreads through the bloodstream to the liver. So due to my increased risk of metastasis my ophthalmic oncologist is having me get MRI's and CT scans of my chest and abdomen every 3 months. But if you have been diagnosed with any kind of ocular melanoma you should make sure to have regular follow-up tests and eye exams with your ophthalmic oncologist and have an ultrasound or MRI on your abdomen at least once each year.