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Melanoma & Skin Cancer support: Introduce yourself and connect
Melanoma & Skin Cancer | Last Active: 3 days ago | Replies (165)Comment receiving replies
Glad to have found this group! I have a long history of SCC, but my real story is finally being diagnosed with EPDS (Erosive Pustular Dermatosis of the Scalp) after a MOHS and failed flap. It has been a long and painful journey, one that apparently never ends. I am currently weaning off 60mg Prednisone and Clobetasol. Horrible side effects. Hoping to find others with similar stories.
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@pamjm: I'm glad you found us as well! But I'm sorry to hear about what brought you here; that's a very rare and painful condition. Since you're looking to connect with others who share this, I'd like to suggest you start a separate post with that specific diagnosis of Erosive Pustular Dermatosis of the Scalp in the group Skin Health: https://connect.mayoclinic.org/group/skin-conditions/. EPDS is considered a skin condition so you may find people within that community. Providing your experience could be of tremendous help to others as you look to others as well.