1. < Neuroendocrine Tumors (NETs)
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First dotatate scan shows shrinkage after PRRT treatments: Good news!

Posted by thunderdad5 @thunderdad5, Sep 26 7:02am

My prrt treatment results are in and it was very good. It showed that my metastic neoindicrine cancer has been stable since February and some shrinkage in the existing tumors was noted. My oncologist thinks I will see some more shrinkage in tumor burden as this dotatate scan was done 4 weeks post my last luthera treatment. Hoping things stay this way for as long as possible. What a relief, whew!!!!

Interested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.

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thunderdad5 | @thunderdad5 | Sep 28 2:20pm
In reply to @tomrennie "@thunderdad5 Yaaaay! Congratulations! I am happy for you. Did that relief provide a good night's sleep..." + (show)
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@thunderdad5 Yaaaay! Congratulations! I am happy for you. Did that relief provide a good night's sleep for you or were you too excited?

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@tomrennie

Slept like a baby, lol

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thunderdad5 | @thunderdad5 | Sep 28 2:20pm
In reply to @christobelle89 "That is wonderful news!" + (show)
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That is wonderful news!

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@christobelle89
Thanks!

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thunderdad5 | @thunderdad5 | Sep 28 2:47pm
In reply to @rodneysmom "wonderful results!! Praise God! May your great results and response to treatment continue! My sister is..." + (show)
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wonderful results!! Praise God! May your great results and response to treatment continue! My sister is receiving same therapy plan and seeing same results . She is being treated at the Mayo Clinic in Jacksonville, Florida by an incredible team!

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@rodneysmom

I was so incredibly happy that for a split second o forgot my wife passed away 2 years ago and i couldn't wait to tell her.

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diane888 | @diane888 | Sep 29 7:27am
In reply to @thunderdad5 "@rodneysmom I was so incredibly happy that for a split second o forgot my wife passed..." + (show)
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@rodneysmom

I was so incredibly happy that for a split second o forgot my wife passed away 2 years ago and i couldn't wait to tell her.

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@thunderdad5
I'm so sorry. How did she pass?

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thunderdad5 | @thunderdad5 | Sep 29 8:47am

It was during her 2nd open heart surgery. Her first was about 12 years ago and went well and she recovery quickly considering. A little over 2 years ago she needed a 2nd surgery. We just thought it would be like the first one. The surgery was supposed to be 5 hours, and ended up taking 10. She came out in critical condition with an external heart pump keeping her alive. The next morning she crashed and although they revived her, i was told there was no more hope and she wouldn't survive. I made the decision to turn off the machines as she didn't want to be like that. She passed almost immediately once the turned off everything. Although I am now at peace with it now. Going through the last few months alone has been so incredibly hard. I also spent the 2 years prior to her passing battling lymphoma which is in remission now. The last few years have exhausted me in a way that no amount of sleep can fix.

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maeve115 | @maeve115 | Sep 29 10:41am
In reply to @thunderdad5 "It was during her 2nd open heart surgery. Her first was about 12 years ago and..." + (show)
Profile picture for thunderdad5 @thunderdad5

It was during her 2nd open heart surgery. Her first was about 12 years ago and went well and she recovery quickly considering. A little over 2 years ago she needed a 2nd surgery. We just thought it would be like the first one. The surgery was supposed to be 5 hours, and ended up taking 10. She came out in critical condition with an external heart pump keeping her alive. The next morning she crashed and although they revived her, i was told there was no more hope and she wouldn't survive. I made the decision to turn off the machines as she didn't want to be like that. She passed almost immediately once the turned off everything. Although I am now at peace with it now. Going through the last few months alone has been so incredibly hard. I also spent the 2 years prior to her passing battling lymphoma which is in remission now. The last few years have exhausted me in a way that no amount of sleep can fix.

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@thunderdad5
Thunderdad.. I love your moniker.. Strong and considerate/caring Dad at the same time.
Just reading your post, my heart goes out to you. I feel as if , often, those of us who go forward first have an easier time than those left to continue on. Our posts here are more than words but have solid people behind them.. Even cyber hugs can carry concern and appreciation.

Maeve

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thunderdad5 | @thunderdad5 | Sep 29 11:14am
In reply to @maeve115 "@thunderdad5 Thunderdad.. I love your moniker.. Strong and considerate/caring Dad at the same time. Just reading..." + (show)
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@thunderdad5
Thunderdad.. I love your moniker.. Strong and considerate/caring Dad at the same time.
Just reading your post, my heart goes out to you. I feel as if , often, those of us who go forward first have an easier time than those left to continue on. Our posts here are more than words but have solid people behind them.. Even cyber hugs can carry concern and appreciation.

Maeve

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@maeve115

Thank you so much, that really means allot to me.

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