Supplements

Posted by thomasmichael @thomasmichael, Sep 27 11:51am

As my peripheral neuropathy continues it's progression, it's time for me to ask the question, "Is there a supplement or treatment I should use?" For 6 years I have been taking Regen, by Pure Health. Does it work? How would anyone know? Placebo effect? I would like to prolong the time before I go to the cane and ultimately the wheel chair like my father did (I have CMT). So I thought checking in with this wonderful and supportive community would be a good idea. Thank you.

Interested in more discussions like this? Go to the Neuropathy Support Group.

John, Volunteer Mentor | @johnbishop | Sep 27 2:04pm

@thomasmichael, That is the question I was trying to answer when I first joined Connect back in 2016. I do take supplements to hopefully slow or stop the progression but the neuropathy is still there and it hasn't gotten any worse so I'm happy so far. I shared my neuropathy journey in another discussion here -https://connect.mayoclinic.org/comment/310341/.

Here are a few references on supplements that might be helpful:
-- Which supplements can help with neuropathy?
https://www.medicalnewstoday.com/articles/326917
-- From the above article - Supplementing deficient vitamins:
https://www.medicalnewstoday.com/articles/326917
-- Vitamins and Supplements for Nerve Health:
https://www.foundationforpn.org/vitamins-and-supplements-for-nerve-health/
Also, there are 90 other discussions on supplements for neuropathy if you want to scan through the list - https://connect.mayoclinic.org/search/discussions/.

mrmacabre | @mrmacabre | Sep 27 4:57pm

What are you taking now?

thomasmichael | @thomasmichael | Sep 27 5:52pm

Regen from Pure Health.

thomasmichael | @thomasmichael | Sep 27 9:15pm

In reply to @johnbishop "@thomasmichael, That is the question I was trying to answer when I first joined Connect back..." + (show)

Thanks JB

linde123 | @linde123 | Sep 28 1:29am

why is finger neuropathy worse after carpal tunnel surgery

linde123 | @linde123 | Sep 28 1:33am

In reply to @linde123 "why is finger neuropathy worse after carpal tunnel surgery" + (show)

@linde123
why is finger neuropathy worse after carpal tunnel surgery

jim49 | @jim49 | Sep 28 7:27am

I am taking prescripion Mentrix. It has been deemed successful for diabetes caused neuropathy but not idiopathic yet (what I have). My symptoms have improved a lot but I also have lost a lot of weight and undertook a vigorous exercise program (I am 76 year old male). I suspect the Mentrix was a good call but I cannot say for sure because I have a lot going on. I am also taking creatine and my muscle tone and bulk has improve

John, Volunteer Mentor | @johnbishop | Sep 28 8:12am

In reply to @linde123 "@linde123 why is finger neuropathy worse after carpal tunnel surgery" + (show)

Welcome @linde123, I have carpal tunnel but haven't had any surgery yet but may have to in the future. Here's some information that may explain what is happening:
- Mayo Clinic Q and A: Recovery after surgery for carpal tunnel syndrome — what’s normal and what’s not -- https://newsnetwork.mayoclinic.org/discussion/mayo-clinic-q-and-a-recovery-after-surgery-for-carpal-tunnel-syndrome-whats-normal-and-whats-not/