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How to manage thalamic pain syndrome?
Stroke & Cerebrovascular Diseases | Last Active: 5 days ago | Replies (21)Comment receiving replies
I had a thelamic stroke last year and it is my right side that has very similar problems as you. I have tried everything and still can't play sports I have been playing can't run sleepy all the time - fell a couple of times because of balance. Hip area is not very useful. Pain 24 hours a day. Doctors all tell me there is just not information on thelimac stroke. Very frustrating. If anyone knows how to deal with thelamic pain syndrome please let me know. thank you, larry
Replies to "I had a thelamic stroke last year and it is my right side that has very..."
@22krut if you have the chance of hydrotherapy, warm water pool, that I find is very helpful as is heat in general.
Avoiding cold, stress and unexpected touch on your stroke side also helps
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@22krut unfortunately Larry, as I have found out when told, "you know there's no cure". I was a bit in shock.
When I was told I was thinking, you are joking. This was in 2024, you hear of all of these medical advances, yet for those thalamic strokes, about a third that lead to this horrible pain, there isn't a known cure.
It appears more manageable if you can tolerate higher dose of medicines that have pain relieving properties. It does seem odd to be taking an anti epileptic drug when you don't have epilepsy and an anti depressant when you don't have depression but these seem to be the only medicinal help that's commonly available. They are hit and miss. About 1 in 8 people will get a real benefit of 50% pain relief and above.
It's like a lottery and you just have to hope you are that 1.
Best of luck