@goldenrascal, welcome to Connect. That was an insightful introduction to the Connect community and participants of the ANA discussion. Also, great points on remaining patient with doctors, even if it feels like they are not listening or passing you off. I have experienced that in my lifetime with my rare disease as well.

@goldenrascal, while we wait for others to share their experience and comment on your experience with your medical journey, I have to ask, what dangerous sports are you in love with?