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What acceptable level of platelets do you shoot for on HU?
Blood Cancers & Disorders | Last Active: Oct 6 10:05am | Replies (77)Comment receiving replies
My doctor is monitoring my platelet count, I am 63 and my platelet count is going up between 5-50k every 6 months, I am now at 700.
I have CALR varient and a TET2 finding. My doctor says that she will start getting concerned about my platelet count once I approach 1000. In the meantime, the only med I am on is a baby asprine 1x per day.
The Diagnosis right now is essential thrombocythemia. and we are monitoring without any specific intervention
Replies to "My doctor is monitoring my platelet count, I am 63 and my platelet count is going..."
Hi @jwjacobs1 ,
I have those two mutations also and my O/H first thought I had ET in 1/2025 but changed it to PMF 2/2025. She was “hell bent” that I take 500 mg Hydrea twice a day and I refused after reading about it as I had no symptoms then and still do not now. My platelets are similar to yours. I did see a MPN specialist about two months ago and she honestly seemed like a flake! She had not read my chart even and thought I had JAK2 which I do not. She did not seem to believe me until I showed her my NGS report I had in my I brought along and then questioned those results! I won’t be seeing her or the first O/H I saw ever again but do have labs again in about one month. My labs have been very similar and I feel fine so I am not concerned. I am now 67, healthy, positive, and fit as usual.
My opinion is that we all must do what we feel is best for our own situation.
Enjoy the Autumn season
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@jwjacobs1 Wow that seems pushing it at 1000? My doctor says under 600 before upping the HU. I fluctuate between 350-500? Every month it’s different but if it stays below 600 and I take the baby aspirin , More meds make my teeth hurt constantly and I just feel like crap. I’ll stick with the 500mg once daily six days a week. I have PV JAK2+ and am 60 yr old female.