doctors who specializes in SIBO and do online medical appointments

Posted by issilloza28 @issilloza28, Sep 22 12:21pm

(Sorry if my English is bad) Hi everyone, so for a little context i've been diagnosed with SIBO and multiple intolerances such as fructose, lactose, and sorbitol since i was 8 (I'm 16 now) and i just want more opinions from very good doctors because in my city it's not common at all having what i have, and it drives me crazy knowing it's been 8 years and i've only had very little improvement. If you know someone or have advice for my condition it would really help 🫰

View Translation

Interested in more discussions like this? Go to the Digestive Health Support Group.

steveinarizona | @steveinarizona | 6 days ago

Where are you and what kind of medical insurance do you have?

caroljeand | @caroljeand | 6 days ago

You can look into Amy Hollenkamp nutrition in Cincinnati, Ohio. Phone is 513-460-8262.
She is a dietitian.

issilloza28 | @issilloza28 | 6 days ago

In reply to @steveinarizona "Where are you and what kind of medical insurance do you have?" + (show)

@steveinarizona Well i didnt mention this but i'm not from USA sooo that

View Translation

issilloza28 | @issilloza28 | 6 days ago

In reply to @caroljeand "You can look into Amy Hollenkamp nutrition in Cincinnati, Ohio. Phone is 513-460-8262. She is a..." + (show)

@caroljeand Thank youuu 🫰

View Translation

steveinarizona | @steveinarizona | 6 days ago

In reply to @issilloza28 "@steveinarizona Well i didnt mention this but i'm not from USA sooo that" + (show)

@issilloza28 This will limit our ability to help you in that most of the posters here are from the US. But we do have a lot of Canadians and Indians posting here. So depending upon where you are, we could help.

But if you are in a country with a national health plan wherein you don't get to choose your doctors and surgeons. But if yo do get to choose, my question still holds and there may be posters here from nearby cities.

dt61 | @dt61 | 6 days ago

as a person who has sibo - which i think never goes away only gets controlled; my personal practice (and advice) is assume everything you eat causes you (personally-not broad brush efforts) to have a sibo flare up.
Start your own list, with one item and continue forward. From personal experience, it feeds on sugar and if i eat only protein (eggs - no butter) the symptoms subside and will stay under control. When I stray from eating what I know is ok, then I get a flare up.

rnewman12 | @rnewman12 | 5 days ago

I agree with dt61 that sufferers of SIBO and CSID (sucrase-isomaltase enzymatic deficiency) need to do a lot of self-treatment. SIBO can lead to damage to the gut lining which then can lead to inability to properly digest starches and most sugars. But CSID, which can be congenital, can also lead to susceptibility to SIBO. It's not always clear what leads to what. The fact that you were diagnosed with "food sensitivities" so young points to congenital SID (but I am not a doctor so please just regard what I just wrote as just a layperson's opinion). Diet is indeed key to getting a handle on this. There are lots of helpful websites that can provide dietary guidance for sufferers of CSID. There are other things (pelvic therapy, stool softeners if you have constipation) but diet is key. As dt61 says animal protein is key. You may be able to digest a few types of fruit (for instance, berries, prunes but not pears) and very limited starches. (I have found that I can tolerate sourdough bread and pasta). Many vegetables (but not all) are okay too. But you will need to experiment.