Evenity Shots

Posted by solnana1 @solnana1, Feb 18 7:38am

I have been getting evenity shots for 10 months. Just had a bone scan and there was NO change. The Dr. Wants me to finish these shots and then choose another form of shots.

Has anyone else experienced these same results? What did you then do? And did it actually help build bone mass?

I also am concerned why my Dr. Would not recommend I take calcium, vitamin D and vitamin k after reading others comments.

Any suggestions experiences would be greatly appreciated.
Thanks everyone.

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Profile picture for followheart87 @followheart87

For me, I'd rather see a rheumatologist than an endocrinologist because autoimmune disorders run in my family. I've always felt that there could be an autoimmune component to my osteoporosis. My rheumatologist tested my parathyroid hormone level and it was normal. I found out that I have M protein and I feel confident that this explains my Dexa scan deterioration.

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@followheart87 what is M protein? TY.

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Profile picture for followheart87 @followheart87

AI says:
Choosing the Right Specialist
Primary cause is hormonal or metabolic: Endocrinologist
Primary cause is autoimmune or inflammatory: Rheumatologist

Of course, how do you know the primary cause until you actually see the specialist? Well, for me, I knew I didn't have any CURRENT hormonal or metabolic issues. I was already told I'm too old to consider HRT. My mother had severe osteoporosis, multiple fractures, and rheumatoid arthritis. My PCP recommended rheumatology rather than endocrinology. I don't think an endocrinologist would be necessary for me at this point, as I have no thyroid or parathyroid issues and I'm 16 yrs post menopause...I don't really know why so many people choose endocrinologists...but I've been satisfied with seeing rheumatology.

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@followheart87 I too see a rheumatologist. Although if one's primary cause is hormonal, as in lack of estrogen which affects all postmenopausal women, I can see why many women see them, although it doesn't seem that many endos recommend HRT. I hope that changes. I may pursue it at some point but expect to be told no because of age and length of time I've been postmenopausal. Trying to figure out when/if/how to fight that battle.

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Profile picture for tillymack @tillymack

You might check with your doctor but my impression is that the best results stem from a variety of approaches. For example, exercise, diet, selected supplements, adequate sleep as well as OP meds.

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@tillymack I agree 100% My new PCP recommended I consider creatine supplements. After researching I've decided to go ahead and look forward to starting soon. Step by step.

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Profile picture for followheart87 @followheart87

For me, I'd rather see a rheumatologist than an endocrinologist because autoimmune disorders run in my family. I've always felt that there could be an autoimmune component to my osteoporosis. My rheumatologist tested my parathyroid hormone level and it was normal. I found out that I have M protein and I feel confident that this explains my Dexa scan deterioration.

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I have rheumatoid, which has most likely contributed to my osteoporosis. I have both an endocrinologist and a rheumatologist. Sadly, they don't work together, so I have to keep each of them updated about the other. Hopefully, your rheumatologist has done the autoimmune screening and doing a 24-hour urine collection to see if you are leaking calcium. Apparently, just being a post-menopausal woman is reason enough to be osteoporotic.

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Profile picture for tillymack @tillymack

@tillymack I agree 100% My new PCP recommended I consider creatine supplements. After researching I've decided to go ahead and look forward to starting soon. Step by step.

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@tillymack Because of my osteoporosis I started taking creatine last month, after doing some research on it, as you did. I only weigh 105 lbs. and am small framed so I'm only taking a 3mg dose a day.

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Profile picture for marigold48 @marigold48

@tillymack Because of my osteoporosis I started taking creatine last month, after doing some research on it, as you did. I only weigh 105 lbs. and am small framed so I'm only taking a 3mg dose a day.

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@marigold48 Thanks for your reply. Sounds like we are marching in unison! I only weigh 112 lbs and am small framed too. My research has also indicated 3 g as an appropriate dose. I guess we'll have to be patient as I've read it takes months to take effect!

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@liftlifts, M protein means monoclonal protein. It's an abnormal antibody and seen in multiple myeloma, MGUS, and related plasma‑cell disorders. There's more to it; you can google "monoclonal protein" and read about it.

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My rheumatologist tested for M protein when I was being worked up for the severe osteoporosis.

This is why seeing a specialist is important. Severe osteoporosis may have an underlying cause. It's definitely not just due to a lack of calcium or due to being postmenopause. Maybe in some people it is, but not in everyone.

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Profile picture for followheart87 @followheart87

My rheumatologist tested for M protein when I was being worked up for the severe osteoporosis.

This is why seeing a specialist is important. Severe osteoporosis may have an underlying cause. It's definitely not just due to a lack of calcium or due to being postmenopause. Maybe in some people it is, but not in everyone.

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@followheart87 I leaned, before starting Evenity, that I was losing calcium through my urine. This was determine following two separate urine collections. No one can answer how long this had been occurring. I also was taking too much vitamin D and have since cut the dosage down from 7 days to 5 days. Again, I must ask, why have doctors waited until we’re in full blown osteoporosis to take drastic measures?

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