Welcome to Connect, @brcc. Your post really resonated with me. I’ve had a combination of throat, breathing and digestive symptoms, along with weight loss, that has been difficult to make sense of. I remember how hard it was when I didn’t know what was connected, which specialist might be able to help, or even where to look next.

I want to be careful saying that because I still don’t know that what I have experienced is the same as what you are experiencing. I’m not on the other side of it with an answer, but I have made so much progress. I do understand how difficult it can be to have very real symptoms and not understand how—or if—they fit together.

It sounds like you’re already doing something important by preparing to talk with your ENT about the symptoms that don’t seem to fit the explanation you’ve been given. Something that has helped me is having specialists look beyond just their own piece and, when possible, work together. Sometimes progress has come not from getting an answer at an appointment, but from learning what that specialist can explain, what they can rule out, and what needs to be explored next.

You might consider writing out your symptoms and questions before the appointment so you can make sure the ENT understands the whole picture, including the weight loss. Are there one or two symptoms that concern you most or that you especially want help understanding?