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Anyone had surgery for hyperparathyroidism?

Posted by lightluz @lightluz, Feb 22, 2025

Dear Forum Members,
I’ve recently been diagnosed with *hyperparathyroidism*, and after discussing treatment options with my doctor, surgery has been suggested as the next step. I’m hoping to get some insights from others who may have gone through a similar experience.

If anyone here has had surgery for hyperparathyroidism, I would greatly appreciate hearing about your journey. Specifically, I’m interested in:
- What your experience was like before and after surgery.
- How long the recovery process took.
- Any challenges or side effects you experienced post-surgery.
- How you felt about the surgery’s long-term effectiveness.

I’ve read that surgery can be very effective, but I’m still feeling a bit uncertain about the process and what to expect. Any advice or personal stories would be incredibly helpful as I make my decision.

Interested in more discussions like this? Go to the Diabetes & Endocrine System Support Group.

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redhead63 | @redhead63 | Sep 21 2:38pm
In reply to @tsch "Just to give you all a different perspective, I have hyperparathyroidism (PTH was 177 a few..." + (show)
Profile picture for tsch @tsch

Just to give you all a different perspective, I have hyperparathyroidism (PTH was 177 a few years ago, now is 103) and your doc should be looking at the calcium levels in your blood and urine as well at PTH. I have no symptoms, not bone or kidney problems, so my doc is monitoring me every 6 months. There are tests to check various body parts that can be affected by PTH, but elevated calcium is the first bad sign. So not everyone with elevated parathyroid hormone needs surgery. I am 81, and healthy overall.

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@tsch Your PTH is way to high!!!

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redhead63 | @redhead63 | Sep 21 2:41pm

Get a second opinion and I would contact the Norman Parathyroid Center in Tampa, Florida. They do more Parathyroid surgery than anyone in the World.

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tsch | @tsch | Sep 21 3:28pm
In reply to @redhead63 "@tsch Your PTH is way to high!!!" + (show)
Profile picture for redhead63 @redhead63

@tsch Your PTH is way to high!!!

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@redhead63
Thanks. I know this and it has been high since at least 2020. But everything else is normal-and I have no symptoms that can go with high PTH. So for now, I am monitored. It does go up and down but nowhere near normal. But all other blood components are normal. I think I have what is normocalcemic hyperparathyroidism. I do not need surgery as of now.

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