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What acceptable level of platelets do you shoot for on HU?
Blood Cancers & Disorders | Last Active: Oct 6 10:05am | Replies (77)Comment receiving replies
@janemcclung
Yes. I wonder because your ET is driven by a different mutation not pushing as hard to drive the platelets down is the protocol.
Will have to look it up
Thanks
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@mjfp49
What we're told is all over the place.
You are right, the particular driver may enter into the calculation. Those of us with the MPL driver are the most likely to progress into leukemia. Maybe that's why in the initial visit, my oncologist told me: start taking HU or risk losing your bone marrow.
Or, it may be random, depending on how our oncologist was trained, or what other patients she or he happens to have treated.
It makes you want to scream sometimes.