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What acceptable level of platelets do you shoot for on HU?
Blood Cancers & Disorders | Last Active: Oct 6 10:05am | Replies (77)Comment receiving replies
@susita
Thanks , I've had ET with JAK2 Mutation for 9 years.
Starting number was high 800 K.
I'm 77.
HU had never bothered me until this May when it made me anemic.
So took a break and will restart drug after tomorrow 's appointment...I assume.
Stopping drug...anemia was gone in a week.
I don't get why my doc always wants my platelets way down in the 200ks.
I am fine at high normal in the 400 ks.
And take less HU.
We shall see what happens.
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@mjfp49
My oncologist here in Bend also wants platelets somewhat lower but I just saw more of an MPN specialist in Portland Oregon at a teaching college OHSU. They see a lot more cases and this Dr is well known. He’s fine with platelets in upper 400’s to low 500’s so that’s what I will discuss with my doc here. I have also been experiencing some issues with iron binding capacity etc.