Yeah that is what our first Dr said. Oh you'll be on meds a few years then you'll be fine. Then she had an intolerance to Imuran which is the first line of meds then switched to cell cept which is the second line of meds and tolerated them but after several months liver enzymes were not getting better and his response then changed to well if it doesn't get better she will have to have a liver transplant. That's when we started looking for a new Dr. We had also gone to a conference about AIH and learned there were other meds and when our Dr was presented with them he bucked it and just said those are post transplant meds and don't get used pre transplant. He reluctantly started her on tacrolimus after doing some research and finding out oh yes they are using it. New Dr informed us of stuff we didn't even get told about some of her test done a year prior like how much damage was already done to her liver and was so much more knowledgeable about everything. Oh yeah and within a week of being on Tacrolimus her liver enzymes were normal and so far have stayed normal for 2 months. She is almost completely off Prednisone.

@punky1973, 20 years ago, when I was in the process of being diagnosed with a liver disease, I was thought to have AIH (autoimmune hepatitis). In my situation, this was due to elevated liver function (LFT) that had been showing in my labwork, and some family autoimmune medical history. I was treated for AIH for a period of time, before my GI decided to send me to a liver specialist for a second opinion. I am happy that he did that because I did not have AIH, and the treatment for AIH would not have helped me.

I am interested because I care about what you learn about his diagnosis anf treatment. How was your appointment on Thursday? What did you find out?