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Autoimmune Diseases | Last Active: 1 day ago | Replies (118)
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@jtg8771, I am well acquainted with the regular routine labs. I began to feel like a pin cushion along my liver journey..
It sounds promising that your daughter might be on a medicine that is helping her.
I was once thought to have AIH (autoimmune hepatitis) by my GI. But he was not certain that was my problem and he sent me to a liver specialist for a 2nd opinion. I share this because I want you to know that if she is not having satisfactory results, that might be something to consider.
Does your daughter have any symptoms like fatigue or nausea?
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She does have fatigue and has even had to not go to classes in college to sleep some. Nausea yes but more than that the just not wanting to eat and stomach hurting. But I have noticed since she switched to tacrolimus for treatment liver enzymes are finally normal and she is 2.5 mg from coming completely off Prednisone. We chose to seek a second opinion on treatment and are now with a very knowledgeable Dr. Out of Houston. The thing that upsets me most is we waited so long to go to someone else. With the enzymes normal she has not had as many boughts with nausea or stomach issues but we will see how things go with her back in school and more stressed with classes. Thankfully this is her last year and I'm hoping if enzymes stay normal she won't have those really bad days she can't even go to class.